My Fibromyalgia Story

Becoming a Fibro Warrior

I work with people on the other side of Fibromyalgia – meaning those who have Fibromyalgia (Fibro Warrior). They have gone through the dark days, the diagnosis, all the yuck in the early days of living with Fibromyalgia, and now they are on the other side. These are the people who have been through all of that and are ready to live again, dream again and have a fulfilling Fibro Life. But, before we go too far, I believe it is important for you know a little about my Fibro Story.

It all began back in 1970 when my petite mom, gave birth to me and my twin sister. Oh wait! I guess you didn’t need me to go back quite that far, did you?

My fibromyalgia story is like the story of so many who are suffering from this chronic condition.

I was a “doer”. I was always busy. My days were planned out almost to the minute. Friends often teased me about it and asked if I scheduled in having sex! Others would look at me with yearning, or maybe envy, wondering how does she do it all? I was proud of all I was accomplishing.

And, then, my time was up. I guess God felt I had done enough doing. I needed to quiet myself and take time to smell the roses. Now, don’t get me wrong. I am not blaming God for giving me Fibromyalgia. It is just a reflection after all the self-pity talks I had asking, “Why me?”

When I crashed, I crashed hard and fast!

I could never get enough sleep. I experienced immense pain everywhere and nothing seemed to help relieve the symptoms. Often, I was reminded of my Grandma Fern. She would say to me, “I love you from the top of your head to the tip of your toes and everywhere in between!” Only, this was pain I was experiencing – not love. No amount of love was going to take this pain away. And, I was feeling the pain from the top of my head to the tip of my toes and everywhere in between. When I got my haircut, I would cry because it literally felt like nerve endings were being cut rather than hair.

Of course, not all of the professionals I dealt with believed in Fibromyalgia, but the ones that did mattered!

Unlike so many people, I had a general practitioner and physical therapist that knew about and believed in the actuality of Fibromyalgia, and they set out to get my diagnosis pronto! This was really unheard of back then because the condition was so new. There was not a lot of information readily available about the illness. Luckily, I had worked with Steve, my physical therapist, two years before the onset of my fibromyalgia symptoms. When he saw me for the first time with the symptoms, he had to look at my chart twice because he did not recognize me. Fibromyalgia had affected my appearance, stature, gait and even my spirit. Before I made it past the reception desk at that appointment, he stated, “You have Fibromyalgia, and we’re going to prove it!” Steve collaborated with my general practitioner, and I had my diagnosis within 6 months. That was August of 2004.

Now, here I am in February 2020, and I am embarking on a new adventure.

Just as my parents did all those years ago. They did not know they were undertaking the adventure of twins until my sister, Susan, came into the world three minutes after me, and it shook their world. Now, they had a whole new bag of worries. New parents of one child is an adjustment, but two? Again, God knew what he was doing because my parents were not able to conceive anymore children after us. They probably didn’t want to either! Ha, Ha!

I know, I know, get to the point! The point is Fibro shakes up your world – turns it upside down. But, when it is all said and done, we have to learn how to live in this new reality we have been forced into. You’re allowed to go through all the grieving stages, almost like a death, because it is a death of who you used to be. With the process of accepting your new reality comes power – the power of reinventing yourself. If you allow it, this can be intoxicatingly exciting. That is what I am here for. I want to help  guide you into this new life, this new you. Who will you decide to become? Join me on this adventure to find out what amazing gifts are in store for you!

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Janet Carnahan - April 25, 2020 Reply

Awesome sauce!! You are a godsend! I can so relate with your story – I will start writing my own and You will help me!, be beside me and guide me (are you hearing song lyrics from long ago?)

    Nicole Schmidt - May 7, 2020 Reply

    I am so sorry I did not respond back to you! I just realized this feature! hehehehe I am so glad you could relate to my story. I would be honored to help you with yours!

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